This blog is here to share updates about Lincoln and his Journey.
He was born with a genetic skin condition called Ichthyosis.
When he was 12 months old we found out he had Chiari Malformation and a Large arachnoid cyst. He had brain surgery and it was discovered that he needed a shunt as well for Hydrocephalus. As of Feb 2017 he has had 6 brain surgeries. He is the light in our life!